We invite patients living with severe thrombophilia to participate in an important research opportunity with Thrombosis UK and for healthcare professionals and partner organization to share this survey. This research initiative aims to gather critical insights directly from patients to inform global efforts in improving diagnosis, treatment protocols and overall patient outcomes.

The survey is for patients living with severe thrombophilia, including:

• Antithrombin Deficiency
  Protein C Deficiency
• Protein S Deficiency
• Homozygous Factor V Leiden
• Combinations such as Factor V Leiden and Prothrombin 20210.

Developed by Thrombosis UK, along with international collaborators and medical experts, the survey is designed to capture the real experiences of people living with severe thrombophilia and to help shape the future of treatment.

This research has the potential to influence medical guidelines, treatment approaches and support services worldwide.

Why patient voices are important

By sharing your perspective, you can help:

• Improve care for current and future patients
• Raise awareness about the challenges faced by those with thrombophilia
• Shape the future of treatment for people living with these conditions around the world
• Inform healthcare providers about what matters most to patients
• Advance research that could lead to better outcomes

The survey will take no more than 5 minutes and can be accessed by clicking the link below. For healthcare professionals, please download the flyer below and share it with your patients.

Thank you for considering this opportunity.

Together, we can work toward better care and outcomes for everyone affected by thrombophilia.